HomeBoundResources.com

HomeBoundResources.com
Tammy I. Glenn, Founder and CEO

Welcome Caregivers!

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Special needs situations, like those we find in a home healthcare setting, demand special responses.

The fact that you’ve registered to participate in this blog is a sign that you are in a special needs situation. You are probably under a tremendous amount of stress and strain – both physically and emotionally – and you probably feel very alone right now.

Take heart…you are not alone.

For what it’s worth, the National Family Caregivers Association (visit their website at www.thefamilycaregiver.org/about/) estimates that there are approximately 54 million people in the nation currently caring for someone in need.It’s not an easy road, and that’s why I’ve created HomeBoundResources.com.

Let's not reinvent the wheel. Together, as a community, we are the experts in collecting and sharing the most important resources, information, and help for people who are challenged by a home healthcare situation.I really do care about how caregivers and patients achieve the highest standard of living possible. To that end, I recently introduced contributing writers as part of Tammy's Think Tank Team. Everybody benefits by a little help from their friends! Look for interesting articles on Fitness, Relationship Dynamics, Mobility, Overcoming Challenges. If you have an issue that needs addressed, let us know. You'd be surprised by the creative solutions people use!

I understand that every situation is different, and good advice in one situation may not be so appropriate in another. So, please let us know what’s working and what’s not. Visit http://www.homeboundresources.com/, and explore the tips, resources and publications available.

And, if you’ve got some advice of your own on a topic that I’ve written about, please feel free to e-mail your feedback to me. This effort works best when we all help each other.

From My Heart to Yours,
Tammy
Tammy@HomeBoundResources.com

Monday, May 30, 2011

Tammy Tested. Caregiver Approved. 3ELove


It’s a sign! A sign that communicates values and triumph. “Embrace Diversity. Educate Your Community. Empower Each Other. Love Life.”

When I turned the corner at the April Abilities Expo in Los Angeles, I witnessed a crowd of people jockeying for position at the cash register. What a great sight to see in a challenging economy! These shoppers were looking for a sign, and they found it at 3ELove. Check out the creative twist on the universal sign that dates back to the politically-incorrect days of “Handicapped.” 3ELove replaced the wheels with a heart. Brilliant!

Founded in 2007 by siblings Annie and Stevie Hopkins, 3E Love is a disability awareness clothing line and marketing company. Their mission is all about living life no matter the obstacles, and I think they’ve created a universal sign that will be as familiar and popular as the “Happy Face.”

“By replacing the wheel with a heart, the stigma of the wheelchair is also removed, and it can be a symbol for people with any disability or impairment. It represents the person, not society's perception of their lack in abilities,” according to the website, www.3elove.bigcartel.com. “The symbol is an attitude and a lifestyle. It's accepting one's abilities and rallying around that diversity and turning it into strength.”

3ELove is a powerful example of turning your creative ideas into reality! What’s in your Imagination?

Express Your SELF!

I know from experience that the benefits of having an outlet for creative expression helps me maintain balance in my life critical to the health of my Mind, Body and Spirit. Dedicating time to creativity and self-expression also is an area that takes a backseat on a regular basis. I’m reminded of this given that my father is a professional musician and my husband is a professional artist.

The dominant part of their time is spent on their craft. Meanwhile, I’m just trying to make it down my checklist to see if I have 45 minutes left in the day to squeeze in my workout and to practice guitar. My dad and my husband, however, spend hours writing music, practicing horns, sketching and painting. At the end of the day, they’ll tell me they are still searching for that one melody or that one canvas that’s just perfect.

Having lived with two artisans for so many years, I know there may be another driver at work. No matter what else draws on their attention, they both always have something to look forward to. Neither rest on their laurels talking about the song, book or painting they someday will produce. Instead, they’re busy toiling away at their heart’s desire. What a delicious way to live your life!

Intuitively in my early 20’s, I must have known the impact of pursuing a personal dream. My mother, as you may know had been bedbound for years. At this point in my 20’s, she was diagnosed with a relatively painless, but terminal Non-Hodgkins Lymphoma, and given weeks to live. I was devastated at the thought of losing my mom—and bound and determined to do everything to keep her.

To that end, I wanted everything about her. I wanted every recipe recorded, every story, every piece of advice. Selfishly, I hired a journalism student, Brenda, from my alma mater to work with her on “Katrin’s Korners,” a book my mom had always talked about writing, but never made time to write. Brenda spent 10 hours a week with her on this project.

Admittedly, Brenda offered my mother a level of attention, respect and patience that I would not have. In those hours they spent together, my mother documented for me and my sisters all the short stories we’d heard growing up. The early stories start around the time of the Great Depression, then move to World War II and birth of the Big Band Era, and the revolution of women and the coming of the 21st Century. One theme I picked up on is that no matter the mood around her, my mom was determined to make lemons into lemonade. She lived her whole life that way. The terminal weeks predicted for my mother turned into months, and the months turned into more than a year. It might have been the book project that stretched the weeks for us, but in my heart I believe there is a Greater Spirit that makes the universe tick.

When I founded HomeBoundResources.com, posting my mother’s book, “Katrin’s Korners” was one of my first goals. It took a few years, but it’s there now for the world to read.

In celebration of this month’s theme in www.DisabledDealerMagazine.com, I’ve discounted the books on the website to less than $10. Please check them out at http://www.homeboundresources.com/publications.html, and I hope my mom serves as an inspiration to you.

Don’t wait any longer to pursue your passions. Seize today and discover how much your creativity can energize your life!

Sunday, May 1, 2011

Tammy Tested. Caregiver Approved.



Shut Up About Your Perfect Kid!

Laughter is the best medicine! Gina Gallagher and Patricia Konjoian are two sisters who also happen to be ordinary mothers of special children. Gina’s daughter, Katie, has Asperger’s syndrome and Patty’s daughter, Jennifer, has bipolar disorder. In 2006, they abandoned the dream of being perfect moms with perfect kids and published their first book, “Shut Up About Your Perfect Kid: A Survival Guide for Ordinary Parents with Special Children.” Now published by Random House, these two moms are sharing their lessons on how to approach real life and real parenting with a sense of humor and a loaded toolbox of resources. Here’s an example of genuine caregivers sharing their successes and failures with a broader community. Their website and blog, www.ShutUpAbout.com , is honest and funny. They’re gaining a following from coast to coast, and their book is reasonably priced around $15. Sign up to follow their blog, and be prepared for a busy site where you’ll discover lots of other parents who not only follow, but actively post replies—which may or may not work for you depending upon how your notifications tuned. Most of all, they have a great attitude and I hope they put a smile on your face the way they did on mine.

Tammy I. Glenn is the founder of HomeBoundResources.com and
HomeBoundResources.BlogSpot.com. She serves as an expert advisor on elder care/aging to KCET-TV Los Angeles and is a member of the Board of Advisors for the National Senior Citizens Bureau. She has nearly 20 years of experience as a caregiver to her mother and is the author of “25 Simple Tips for Caregivers” in addition to numerous contributed articles.

What's in your toolbox?



(Tammy's nephew, Blake, takes after his Great Grampa, Sam "Daddy Jazz" Glenn. Here he is rockin' out at his band's first gig in October 2010.)

One of the greatest personal challenges I’ve faced has been to define my identity within the context of the strong women in my family, particularly my mother. I never doubted for a minute that my Mom—even totally bedbound—wasn’t fully capable of accomplishing anything she set out to do. Same thing with my sisters.

Growing up in the shadow of such strong women is both a blessing and a curse. On one hand, I inherited so many of their incredible qualities. On the other, I had an opportunity to consciously break some destructive patterns and cut my own path. The latter journey is the richest and most difficult to achieve. My mother had high expectations for me. One of them was that I would earn a college degree, another was that I would not pursue a traditional path toward marriage, but rather explore my career options before setting out to get married and have a family. As one more example, she wanted me to be financially independent in that I would know how to earn, save and invest my own money.

Keep in mind that these were cutting edge ideas for a woman, especially born to someone who was raised during the Great Depression. My mother was a teenager during World War II, and a wife and mom during the 1950’s when women barely had driver’s licenses, let alone their own bank accounts.

The point is that we can visualize extraordinary lives for our children. The challenge is to arm them with the tools not only so that they can visualize for themselves, but also so that they can overcome generational obstacles in order to cut their own paths.

Kids—with autism, physical or mental challenges—deserve the best toolbox we can provide. Remember the old Chinese proverb, “Give a man a fish and you feed him for a day. Teach a man to fish and you feed him for a lifetime.” That’s where your parenting challenge comes in.

We all have challenges. Armed with the right tools, however, we can tackle most anything. It begins with your own paradigm, your own pattern of behavior, which I believe can be altered by asking oneself, “If I could, how would I?” And, more importantly, pass this idea down to a child, “If you could, how would you?”

Nine year old Ryan, whom I met at the Abilities Expo, dismissed the pinball machines a few years back when he first met Chris and Jim Rohan at the Disabled Dealer booth. How could a kid who couldn’t use his arms possibly play pinball? Jim asked that question, found the answer, and today, Ryan is a Pinball Whiz!

Beware your own self-imposed limitations! And, remember that these challenges are just part of the characteristics of who we are. The challenges do not define us. It’s how we use the toolbox that defines us.

I dedicate this month’s column to my handsome nephew, Blake, who I believe is more challenged being a teenager right now than he is by autism. In fact, I sometimes have to be reminded that autism is a challenge for him at all. Blake is a whiz on the electric guitar, he knows how to operate a flight simulator, plays a mean hand of cards, and he filmed and produced the video of my wedding. This is a young man who was and is armed with an extraordinary toolbox—and so far, I haven’t seen many obstacles that he’s not confident to tackle. I’m so proud of you, Blake, for using the tools available to you. And, to Blake’s mom, Kristen, thank you for setting such a great example for mothers who have special kids!